Open-Ended Questions to Promote Discussions for Advanced Care Planning (Holley, 2007, p.405)
Addressing goals of care when prognosis is uncertain
- What are your most important hopes?
- What concerns you most about your illness?
- What is your quality of life like now?
- Is it more important for you to live as long as possible, despite some suffering, or to live without suffering for a shorter length of time?
- What are your biggest fears?
- Given the severity of your illness, what is most important for you to achieve?
- What do you understand about your illness?
- How much do you want to know?
Advance-care planning and end-of-life issues
- What makes life most worth living to you?
- Are there circumstances in which you would find life not worth living?
- Have you seen or been with someone who had a particularly good (or difficult) death?
- What have been the worst and the best things about this illness for you?
- If you are unable to speak for yourself in the future, who would be best able to represent your views and values? (substitute decision maker)
- Have you given any thought to what kinds of treatment you would want, or not want, if you become unable to speak for yourself in the future? (advanced directive)
- Have you considered circumstances in which you would want to stop dialysis?
- Where would you like to be and who would you like to be there when you die?
Decision Support for Adults Living with Chronic Kidney Disease
Point of Care Resources